Tag: Disabled Life
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Living With Idiopathic Intracranial Hypertension.
It’s often described as “just a headache” but, living with Idiopathic Intracranial Hypertension feels like so much more. This is what it’s really like to live with the pressure, the symptoms, and the parts of an invisible condition that are hardest to explain — but impossible to ignore.
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They Said It Was a Miracle I Survived… This Is the Reality
They called it a miracle that I survived — but no one talks about what comes after. Nearly three years later, I’m still living in hospital, navigating trauma, disability, and the reality of losing everything I once knew as life.
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Easter Bank Holiday Reflections.
Being told I ‘look well’ felt different, a testament to progress and resilience.
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Why I’m Speaking Loudly About My Reality
800 days. That’s how long my life has been paused inside hospital walls. What started as survival has turned into exhaustion, trauma, and a body that can’t stay silent anymore. This is the reality of institutionalisation, seizures, and FND — and what happens when your “normal” was never normal to begin with. I’m speaking loudly…
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Hospital Chronicles: Day 726 — Two Years in Hospital, Recovery, Disability & Hope
Day 726 in hospital. Uncertain scans, slow progress, fragile mental health, and another Christmas spent behind hospital walls — reflecting on loss, survival, and the quiet hope found in small steps forward.
Jordan Beaven 