Tag: Disability Awareness
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Living With Idiopathic Intracranial Hypertension.
It’s often described as “just a headache” but, living with Idiopathic Intracranial Hypertension feels like so much more. This is what it’s really like to live with the pressure, the symptoms, and the parts of an invisible condition that are hardest to explain — but impossible to ignore.
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They Said It Was a Miracle I Survived… This Is the Reality
They called it a miracle that I survived — but no one talks about what comes after. Nearly three years later, I’m still living in hospital, navigating trauma, disability, and the reality of losing everything I once knew as life.
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Easter Bank Holiday Reflections.
Being told I ‘look well’ felt different, a testament to progress and resilience.
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Mounjaro Diaries: Autism, Food Guilt & Why Communication Matters in Healthcare
A difficult day on Mounjaro that reminded me how powerful communication can be — especially when you’re autistic, take things literally, and are already navigating a complicated relationship with food.
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Why I’m Speaking Loudly About My Reality
800 days. That’s how long my life has been paused inside hospital walls. What started as survival has turned into exhaustion, trauma, and a body that can’t stay silent anymore. This is the reality of institutionalisation, seizures, and FND — and what happens when your “normal” was never normal to begin with. I’m speaking loudly…
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Hospital Chronicles: Day 726 — Two Years in Hospital, Recovery, Disability & Hope
Day 726 in hospital. Uncertain scans, slow progress, fragile mental health, and another Christmas spent behind hospital walls — reflecting on loss, survival, and the quiet hope found in small steps forward.
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Burnout, Meltdowns, and Learning Myself All Over Again (Again)
Lately, I’ve been deep in autistic burnout—navigating meltdowns, shutdowns, and the overwhelm that comes from sensory overload and doing too much. I’m learning to recognise the signs, separate mental health crises from autistic responses, and find ways to soothe myself before I hit breaking point. This post is a raw reflection on that journey, plus…
Jordan Beaven 